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Carers Denmark

Carers Denmark works to improve the conditions of life for carers themselves, irrespective of the diagnoses or handicaps of those for whom they care.

Our focus is on changing policy and improving carers’ rights, and we are keen to collaborate as widely as possible with other interest organisations working on health policy – nationally and internationally.

Carers Denmark is a member of Eurocares and of IACO – International Organisation of Carer Organisations.

Together with DaneAge, we have developed our

 

Carers’ Charter

10 Conditions for a Good Life as a Carer

Carers Denmark and Dane Age strive for improvements so family carers can live well and look after themselves while actively caring for others. That’s why we have developed the Carers’ Charter to describe the conditions for a good life as a carer. We hope the Charter will

  • Show family carers how to look after their own needs
  • Help professional carers understand the life circumstances of family carers and thus empower them be more open and helpful
  • Inspire health and social authorities to develop services and support systems to benefit carers
  • Alert politicians to the huge contribution family carers make, and encourage them to work towards a more carer-friendly society

A good life for you as a carer means that

  1. Your life remains as unaffected as possible

This means that your family is offered sufficient practical help and physical aids to ensure that you do not have to take on the role of nurse or watch-keeper, but that you and the person you care for can maintain good family relations and/or marital relations for as long as possible. It also means that you are offered information, support and tools to safeguard your own quality of life after the demise of the person you care for.

  1. You are heard and feel that your opinions and needs are taken seriously

This means that you can participate in consultations with professionals, and that they actively seek your input. With the consent of the person you care for, they keep you informed of changes to care or treatments, and they take your individual wishes, limitations and general welfare into account.

  1. Your contributions as a carer are valued and respected

This means that professionals meet you with respect and openness, that you are offered any assistance necessary, and that you can limit your involvement, to the point of opting out of the caring role. It also means that those around you are attentive to your life circumstances, so that you are able to speak openly about the disease and how it affects you and your family.

  1. Authorities and professionals are concerned for your welfare

This mean that you can speak to your GP, social worker or other contact about your feelings and about how the situation affects you. It also means that relevant and adequate support is available to you, such as practical help at home and psychological support.

  1. There are reliable alternatives to your involvement

This means that you feel confident that others will step in temporarily or permanently if you need or wish to withdraw from caring, or if there are certain tasks you do not wish to take on. This also ensures good care and treatment for those without a family carer.

  1. You have the opportunity to take a break and look after yourself

This means that you have access to sufficiently flexible and reliable respite care of good quality, so that you can focus on looking after yourself and recharging your batteries, for instance by spending time on your own health and wellbeing, your friends and the rest of your family. You must be encouraged to understand the importance of this.

  1. You are aware of how the disease or condition can affect you

That means that you are told how the disease or condition of the person you care for can affect you as a carer, and how demanding caring can become for you. It also means that you have access to a carers’ guide or other key contact who can be your source of empathetic counselling and advice throughout your time as a carer. It further means that you are offered advice on looking after yourself physically, mentally and socially, e.g. through carer training.

  1. You have the opportunity to meet peers

This means that you are offered networking opportunities with other carers, e.g. other spousal carers or other adult children with ailing parents. This opportunity should be initiated by professionals, but established networks may later be served by volunteer organisations.

  1. It is easy for you to communicate with authorities and professionals

This means that you can contact key staff by email or telephone and that you can always expect a response within a reasonable time. It also means that consultations, treatments, planned hospitalisation etc. is planned in order to interfere as little as possible with your work and other commitments.

  1. Your work is not affected more than absolutely necessary

This means that your employer shows understanding for your situation, offers flexible working hours and gives you the opportunity to take time off to participate in consultations etc. It also means that your income now and in future is not affected unnecessarily, which may entail that pension schemes, part-time options etc. include compensation for loss of income.

To learn more, access our pages in Danish and take your chances with GoogleTranslate.